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Up and Down feelings

How can you go from feeling so great for having accomplished so much in one day, to feeling so flat and down for no reason. I know there is a reason, but why all of a sudden? I spoke to mum this afternoon to see how she was going and if she wanted some extra support tomorrow for her bone marrow test. She is coping with this so much better than I am. I am not very good at waiting for results, I want to know now! Hopefully tomorrow the DR will have some more information and test results to be able to start making some decisions on treatment.

I was on such a roll today with work for Mummy’s Wish. I am trying to finalise all of our policies and procedures to put into an organisational manual to help prepare us for applying for grants and sponsorships. I was hoping for a policy fairy to appear, but she never did so “if it is to be it is up to me”. I had a great day working out what procedures and policies we need and getting drafts of them. Event hough it isn’t completed, I feel so much better knowing I have finished a fair bit of it.

I also managed to send out some certificates of appreciation and took a couple of new referrals. I think that may have also contributed to the down part of the day. There is still so much to do with Mummy’s Wish but we seem to accomplishing much more now.


Not happy with cancer

The heading pretty much says it all, but there is bigger story behind it being said today.

A few weeks ago my mum told me that she had found a lump in her neck, gone to the GP’s and had a needle biopsy done. I was told on a Sunday and the biopsy was done on the Friday. We anxiously awaited news from the GP about the results but she decided to ring them instead. She was told if it was important that the GP would ring her, however she looked up the results and said it looks like mum should see the GP on the Friday (4 days after the phone call – not immediately). Friday comes along and the GP gives mum the results. A little ambiguous at first “a B-cell lymphoproliferative disorder” with ” suspicious lymphoma” and she should see a haematologist. He would arrange the referral and the specialists office would get in contact with her.

After one and a half weeks of getting the GP to send the referral, the specialist’s receptionists letting us know whether they even received the referral and being told that as a new patient she will have to wait 4-6 weeks, mum decided that long a wait was unacceptable and wanted to get into to see my specialist. 1 phone call later, she was in to see him the next day (Thursday 29th July).

My specialist doesn’t pull any punches and just gets on with his job of working out what is wrong and how to fix it. Mum was informed that from the results of the original biopsy she has a form of non-hodgkins lymphoma but he isn’t sure which one yet and more tests need to be done. Mum had surgery last Friday to have the lymph node removed and for the node to have a further biopsy. She is due to have a PET scan tomorrow and a bone marrow test on Thursday.

We are all feeling quite confident that it is a slow acting cancer and that is has been caught early. She has had good blood test results so far and hasn’t had any of the other cancer symptoms. It is even quite probable she will avoid chemo!

I will keep everyone posted on how she is going.

My cancer story – part 2

My previous blog post I had left off where I had just been seen by a different GP who asked lots of questions and thought it was advisable to have a chest X-ray. I can’t remember if she told me what she was looking for. I still had my 11 week old baby with me, so I went home and rang my husband to come home too so I could easily go and get this x-ray. I had never had anything majorly wrong with me, so I wasn’t overly concerned.

As I was waiting in the waiting room for the results to come back, they called me back to get another x-ray done. I’ve never been good at just waiting, so I opened the results. It mentioned there was a shadow and the doctor recommended a CT scan, yet I still wasn’t concerned. I rang my husband to let him know I needed to go back to the GP to discuss the results so I might be an hour later than expected. He mentioned that the doctor had already called him and they were waiting for me. She was able to get me an appointment for a CT scan that afternoon.

I am still surprised at how much detail from that day I can still remember 4 years on.

My husband, my daughter and I went to the X-Ray place to get the CT scan. This was a little scary as they needed to put in a canula to inject some dye during the process. The scan didn’t take too long and the dye was interesting – a hot flush all the way through the body. The GP said as soon as I get the results to ring her no matter what time of night it was. The results said multiple tumours most likely lymphoma. Strangely enough I went home and cried, and cried and cried.

More soon 🙂

Cancer update – it’s all good

I had my 6-monthly check up with my haematologist today and the news is still good. Not that I was expecting anything bad, but it is still the expectation whenever you see a specialist. I haven’t gone into too much detail yet about my cancer experience so here goes.

My daughter was born in April 2006 and was a great baby. After 6 weeks she slept through the night, although she didn’t sleep long during the day it didn’t seem to matter. So I decided to do some casual work from home which was easy to do remotely. This shouldn’t have tired me out much at all but it did, immensely. I am an extremely loyal person and believe that I should do not only what is right for me but for those around me, so I resigned from job. I went to my doctor’s a couple of times in the previous weeks and had low iron levels which was always put down to just having a baby. I knew something wasn’t quite right when I had a funny cough whenever I spoke or laughed.

I went back to the doctors, but I couldn’t see my regular GP and decided I would see someone else that day (I call it “that day”). She went through the previous doctor’s notes and asked all the right questions.  To be continued!